Today was a big day for Will and honestly for me! We ordered Will's wheelchair! I have to say, it's going to be a pretty cool looking ride! Robert from numotion was waiting for us at the gym this morning. (Mr. Will did not want to wake up after waking up at 3:00am and not getting back to sleep until 5:00!) Anyway, Robert was very nice and made ordering a wheelchair a very easy, non-intimidating process. In about 90 short days (ha!) we should have Will's chair. Now to start thinking of a good name!
Ok, now on to Will's amazing power. Tiffany first tried this a couple times last week. It truly is amazing!
Will has ataxia. It causes him to shake, kind of like having tremors. It is especially bad when he's tired. It is probably one of his biggest frustrations especially when he's focusing on fine motor tasks...writing his name, puzzles, even eating. We have talked about starting him on medication, but like any medication there are some undesirable side effects so we decided against it.
I never gave it a thought to ask him to stop. Now, he's not cured or anything. His little body still shakes. But...he can control it. Isn't that exciting! Quieting his body doesn't seem to be too hard for him, but keeping it quiet is another story. Hopefully though, with practice, he'll gain more and more control. Think of the possibilities! I thought you would have a hard time believing this so I am sharing two short clips- both examples of Will's amazing power!
Pretty cool huh! Now, this next one is at the end of the three hour session. Actually it's overtime. Will had already shot baskets from his knees, climbed the stairs and took a long (aprox 30min) walk in the hallway. He came back in the gym, took his shoes off, then Miss Tiffany took off the "spacesuit" and THEN he stood at the wall. I just want to point out how tired Will must be. Now, remember what I mentioned above...his ataxia seems to increase when he's fatigued. Now watch this...
Ok, now on to Will's amazing power. Tiffany first tried this a couple times last week. It truly is amazing!
Will has ataxia. It causes him to shake, kind of like having tremors. It is especially bad when he's tired. It is probably one of his biggest frustrations especially when he's focusing on fine motor tasks...writing his name, puzzles, even eating. We have talked about starting him on medication, but like any medication there are some undesirable side effects so we decided against it.
I never gave it a thought to ask him to stop. Now, he's not cured or anything. His little body still shakes. But...he can control it. Isn't that exciting! Quieting his body doesn't seem to be too hard for him, but keeping it quiet is another story. Hopefully though, with practice, he'll gain more and more control. Think of the possibilities! I thought you would have a hard time believing this so I am sharing two short clips- both examples of Will's amazing power!
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