Will makes three...

Today started out kind of gloomy in Kansas City.  A few minutes after we got to the gym it started getting very dark.  All of a sudden it was pouring!  It turned out to be a beautiful day, what a difference a few hours can make in the weather.  What a difference a few weeks can make in a brave 5 year old boy!   Mr. Will has picked up some bad habits.  "Help me!" to name one.  I'm not sure when it happened, I hardly ever hear him plead for help at home.  I know Will gets frustrated, we all do about certain things.  I just don't want him to give up too quickly and ask for help.  So, if you're reading this and are given the opportunity to help Mr. Will...make sure he has tried his hardest first.  It will benefit him greatly!  It's sometimes hard to watch but he can do it, we just have to let him try! Will is getting stronger and stronger.  I am amazed at how far he has come in the last few months.  These last t...

Yet another amazing day at the gym.  Mr. Will is working so very hard!  Today he basically started "working out" by himself!  Tiffany and I were talking about changes we'd like to make to Alfie and tinkering around with some ideas.  I glance over at Will and he is crawling up to the blue wedge, puts his hand on the wedge and then kneels next to it.  He proceeds to stand up (hands still on the wedge) and then slides down.  This is a normal part of Will's routine, but usually Miss Tiffany is sitting there helping him stand all the way up and throw a beanbag or ball before he slides down.  Will was doing his best to do this on his own.  What a kid! Will had a great day.  He did much better on his walk through the building.  He is still struggling with leaning back on Alfie.  When this happens he rolls backward, which is very frustrating for Will.  Today, he had a quicker recovery time each time he stepped backward.  It's the...

Today was a big day for Will and honestly for me!  We ordered Will's wheelchair!  I have to say, it's going to be a pretty cool looking ride!  Robert from numotion was waiting for us at the gym this morning.  (Mr. Will did not want to wake up after waking up at 3:00am and not getting back to sleep until 5:00!)  Anyway, Robert was very nice and made ordering a wheelchair a very easy, non-intimidating process.  In about 90 short days (ha!) we should have Will's chair.  Now to start thinking of a good name! Ok, now on to Will's amazing power.  Tiffany first tried this a couple times last week.  It truly is amazing! Will has ataxia.  It causes him to shake, kind of like having tremors.  It is especially bad when he's tired.  It is probably one of his biggest frustrations especially when he's focusing on fine motor tasks...writing his name, puzzles, even eating.  We have talked about starting him on medication, but like any ...