Skip to main content

What's all the fuss about...

Life is always so crazy busy for me that I never find time to blog.  I really need to schedule into my week...somewhere!  I think most of you know about Will's upcoming trip out West, but I thought I should probably tell the rest of you!
Mr. Will and I are going to be leaving for Kansas City on Mother's Day for a little adventure!  The next day May 13th Will has an evaluation  at the Hyperbaric Healing Institute (www.hhi-kc.com) to begin a three week intensive therapy session!  He will be wearing a special therapeutic suit that will make his brain more aware of what his body is doing.  That's the short, simple version anyway.  The therapy is everyday, 5 days a week, for three weeks.  He will finish on May 31st.  The hope is that after so many hours in the intensive therapy suit, his brain will remember the correct way for his body to move (again, in simple terms), and he will make some measurable progress.  If you're interested in more information you can look here...www.suittherapy.com/.  This website is full of information, click on TheraSuit Method.  This therapy is often used for children with cerebral palsy, although that is not Will's diagnosis.
Phil and I are excited about the timing of this therapy.  Will has a strong desire to be independent.  He tries to stand up often.  When we help him stand he says, "Ok, now let me go".  I wish I could!  I think with his "will" and the structure of the therapy...we could see amazing results!  Of course, I'm not expecting miracles or anything like that...just positive thinking!

Comments

Popular posts from this blog

The Final Week! A fun filled weekend with family and dives 27 &28

Happy Monday!  It's week 3.  We're almost finished.  Will is ready to go home.  He is missing his Daddy, (and he just saw him yesterday!). Phil and the kids came in Friday night and stayed until yesterday afternoon.  We filled the weekend with as much as we could!  Two movies (me and big kids), 3 dives (Will and his daddy), indoor skydiving (Ben and Isabel), and church (together!)!  Together again!  My kiddos!  Will's waving to the camera! All the happy divers...Phil, Grandma Linda, Mason (front and center!) Josie and Will! I had a fun surprise for Ben and Isabel!  Indoor Skydiving!  They LOVED it!  Score one for MOM!  It was fun to watch.  Will said he's going to do it next time!  I might just try it too!   They take you out once to let you figure it out and then give you a second flight to go much higher! The first video shows Isabel's first flight, the instructor said sh...

Hello Friday!!! Dives 36 and 37

Dive 36- Josie and Will.  Started the day with another dose and oxygen and Mickey Mouse! Our last solo workout in Miss Tiffany's gym.  We skipped the yoga today and went right for the stairs.  Will grabbed his canes and some friends and got started.  As he was walking it occurred to me how often I took for granted when Ben and Isabel went walking across the floor with toys in their hands.  Just think about that for a minute...then watch this video! He carried Mario and Luigi to the stairs.  I carried them up the stairs and then he proceeded to throw them down.  Typical kiddo! After getting hurled down the stairs now poor Mario has to be thrown in a hoop!  Poor guy! He threw all of Mario's friends in the basket too.   Then he made his way across the room to leave Miss Tiffany one last message.  He made it about halfway when he fell, but you know Will, he got right up and finished the job! I think Will enjoy...

Soccer!

Miss Isabel decided she would play soccer this year.  She played when she was in Kindergarten but when 1st grade sign ups came around she said she didn't want to play.  When I asked her why, she said..."It's just too much running!".  Then when sign ups came in second grade, she thought she might like it again.  Well, we signed her up and then she decided that she didn't want to play after all.  Practices hadn't even started yet so we let her quit.  Many of her friends were playing though and I think once the season really got started, she regretted her decision.  So here we are, a year later and  Izzy (as she's starting to use these days) is playing soccer in the third grade!  There is still a lot of running, which she's still not crazy about, but hey...she's playing!