Skip to main content

A welcome change

Children's Hospital is a thing of the past!  It's a great hospital, don't get me wrong.  It just wasn't a good fit for us.  Since Will's birth 4 years ago, he's had about 5 different neurologists!  Just when we get  used to someone...they're gone!  I understand, Children's is a teaching hospital so they see a lot of medical students come and go.  It's just doesn't work well when you're trying to form a relationship with a child and vice versa.  Also this summer there was a major scheduling mistake.  That was the last straw.


So on to greener pastures!  We recently visited with the Head of Neurology at Cardinal Glennon Hospital.  (I never could get an appointment with the department head at Children's...believe me I tried!)  Dr. Goretzke was very personable. He was very interested in Will's medical history.   He admitted right away that he didn't have much experience with CFD but he was very willing to research and learn as much as he could!  (You have no idea how refreshing that was to hear!)  When it came time for him to examine Will I almost cried!  He was so sweet with him!  Will brought a Grover puppet with him to the office.  Dr. Goretzke examined Grover first and then moved on to Will.  It was very sweet to see him check Grover's reflexes!  I'm sold!  I loved the appointment!  I forgot to mention the bonus... there is a satellite office only 20 minutes from our house!  Dr. Goretzke will always be the doctor we see at this office!  This is a true blessing!

I really hope this relationship works out!  I'm pretty smitten so far!  :)

Comments

Popular posts from this blog

The Final Week! A fun filled weekend with family and dives 27 &28

Happy Monday!  It's week 3.  We're almost finished.  Will is ready to go home.  He is missing his Daddy, (and he just saw him yesterday!). Phil and the kids came in Friday night and stayed until yesterday afternoon.  We filled the weekend with as much as we could!  Two movies (me and big kids), 3 dives (Will and his daddy), indoor skydiving (Ben and Isabel), and church (together!)!  Together again!  My kiddos!  Will's waving to the camera! All the happy divers...Phil, Grandma Linda, Mason (front and center!) Josie and Will! I had a fun surprise for Ben and Isabel!  Indoor Skydiving!  They LOVED it!  Score one for MOM!  It was fun to watch.  Will said he's going to do it next time!  I might just try it too!   They take you out once to let you figure it out and then give you a second flight to go much higher! The first video shows Isabel's first flight, the instructor said sh...

Hello Friday!!! Dives 36 and 37

Dive 36- Josie and Will.  Started the day with another dose and oxygen and Mickey Mouse! Our last solo workout in Miss Tiffany's gym.  We skipped the yoga today and went right for the stairs.  Will grabbed his canes and some friends and got started.  As he was walking it occurred to me how often I took for granted when Ben and Isabel went walking across the floor with toys in their hands.  Just think about that for a minute...then watch this video! He carried Mario and Luigi to the stairs.  I carried them up the stairs and then he proceeded to throw them down.  Typical kiddo! After getting hurled down the stairs now poor Mario has to be thrown in a hoop!  Poor guy! He threw all of Mario's friends in the basket too.   Then he made his way across the room to leave Miss Tiffany one last message.  He made it about halfway when he fell, but you know Will, he got right up and finished the job! I think Will enjoy...

Week 3, Tuesday, Dives 29 & 30

Dive 29- Mr. Will and Josie.  Mickey Mouse, our morning ritual! After the dive Will headed over to Miss Tiffany's gym.  I guess we'll stick around, he likes working in there!  He basically set the whole day up, I only added one thing!  He started himself on the stairs.  I just stood back and filmed! Rock on , Mr. Will! This next thing I added.  The next time you get up from sitting (in a chair for example) think about what all goes into that. I think this will be something he could master when we come back this summer!  By the way, Miss Tiffany will be back for that one!   Back to Will's plan.  He didn't want me to video him getting into position but I thought it showed a lot of good work on Will's part.  Pulling yourself on a scooter is an amazing workout!   Now for the "real" video.  Will set up all the pins and now he is kicking them over, according to his plan! Miss Cheryl poppe...